October 15th, Keto start date
Josiah was admitted to the hospital Sunday October 14th
at 7:00 pm so that we would be ready to go first thing Monday morning. He was
weighed in at 15.7 kgs. Our first night was uneventful, Josiah and I stayed in
the hospital, and Caleb stayed across the street at Rotel. That night, they put a urine bag on Josiah to
collect a sample, so they could get a baseline of the keytones showing in his
urine.
PICTURES OF JOSIAH'S "MEAL" AND HIM DRINKING IT
First thing Monday morning, Julie, Josiah’s dietician
arrived with his breakfast in hand. Breaky consisted of a small amount of
Microlipids (liquid fat), 35% cream, and KetoCal powder. His breakfast, lunch
and dinner were this “shake”, and the entire days meals made up 1/3 of his
normal caloric intake. He was soo
hungry, always signing and asking for “more”. It was so hard seeing him hungry like that.
Sadly, Josiah was NOT a fan of the urnine bag, and refused
to pee while wearing it. Midday Monday morning they did a bladder scan and saw
that Josiah had 390 ml of fluid in his bladder. Then, that was followed by their round of
bloodwork, attempting first in the left arm, and when unsuccessful after a few minutes, they decided to move to the right arm.
Then, as soon
as that finished is when the nurse decided she could not wait any longer for
him to pee, so she removed the urine bag...which was Very painful.
Right after that, 4 of us held Josiah down while they attempted to insert a
catheter to drain some urine out for the keytone test. After multiple attemts with that size, she tried a smaller size, and still had no sucess. Both times when pulling the catheter it was lined with
blood. Poor little guy! By the time that
was all over with, they wanted to put another bag on, as it was still very
important that they catch some urine, but I told her I couldn’t do it!!
Instead, we loaded his diaper with cotton balls, and would use them to collect
what we needed.
Because the catheter did some damage, every time he would
start to pee for the rest of the day...he would scream and cry, and stop
himself from going. Finally around 7:00 Monday evening, he finally bit the
bullet and went. He cried for soooo long, and we felt so helpless. Not a nice
feeling at all.
More tomorrow J


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