So, Josiah has now been on the ketogenic diet for 4 weeks, and here's whats new: One full week into the diet, Josiah had a seizure free day, which turned into two days seizure free, and amazingly, we hit 1 week seizure free!! What an awesome gift that was! Boy, what a life changer! Simple things were so much easier to do when we didnt worry about seizures. Sadly, the day after we hit a week seizure free, he had 4 when he woke up that morning. The next day he had more, and that pattern has continued up to today, where we are pretty much back to where we started number wise. He is averaging between 30-60 a day again. The good thing though is that they are isolated to after he wakes up from a sleep. Before the diet, he had them randomly throughout the day, which meant he had to wear his helmet all the time. But now, he is able to walk around without the helmet. So, our prayer is that the random seizures stay away. He has a neurologist appointment coming up in a couple of weeks, as well as an EEG to see whats going on behind the scenes, so that will tell us if this diet has done anything other than what we can see. Thankfully, he is eating the food well for us, and seems to be tolerating it as best as we could hope. What a little trooper! He makes us so proud every day.
We have our Christmas tree up now, which Josiah just loves. I think the reason he likes it so much is it if full of "balls"....his most favourite thing in the world. To him the ornaments are balls to play with.....all sparkly and pretty :)
Thats all for now, just a quick post to update his progress so far!!
God Bless
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