Since all of the tests have been completed...for the first time over 2 years all we have to do is wait. We're not trying this medication, getting rid of another med, we're not on a waiting list to try a diet that "may work", or running from this Doctor to that Dr. We are waiting. And I must admit, it's a nice feeling. Its rather refreshing to know that from here on out, its ALL GOD. So, on May 8th a large group of specialists met at SickKids to pour over Josiah's case and determine if he is a surgical candidate based on the results from all the testing he has gone through. Shortly after they met, I got a call from our Clinical Co-ordinator to give us an appointment to hear their decision. So, early in July we head back to SickKids to meet our Neurologist, Dr Snead, and then a Neurosurgeon Dr. Rutka. All that being said, we have also been praying that the Lord would give us the necessary wisdom required to make the desicion to proceed with the operation if he is a candidate. Sometimes, the thought of a surgery of this caliber is so daunting, that on Josiah's better days, its easy to think that maybe we could just get by with him having seizures for the rest of his life. But, over the last few weeks, Josiah's seizure actiity has been reverting back towards his old patterns....the way it was before he started the ketogenic diet. Its not as bad yet as it was back then,his seizures are growing in intensity, slowly, but still noticably. Also, he is beginning to have more absence seizures, which were also quite frequent before the ketogenic diet. All that being said, we are still plugging away on this diet, and Josiah is still tolerating it like a rock star! He's so easy going!!!
Here's a couple pics!!!
Josiahs a little tree lover.




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