Epilepsy Monitoring Unit

 In the Kitchen at Ronald McDonald house. I am preparing Josiahs Ketogenic Food

 Second Day in the EMU.....Josiah and Daddy having a cuddle

 Sitting in the stroller to get a break from the bed

3 days into the week, they unhooked Josiah from the EEG monitoring unit, but left the EEG probes on for the MEG scan he would have on Thursday. This picture is taken in the Toronto Blue Jays room at Ronald McDonald house.

 

 

Here we are at SickKids in the Epilepsy Monitoring Unit. We stayed last night at Ronald McDonald House here in Toronto, and came to the hospital this morning. Josiah is booked into the EMU for 5 days. They will do a continuous Video EEG for the entire time he is here, capturing any seizures via the EEG Wires/Probes and camera. So far, they have captured more seizure data in his 1/2 day here than they get in an entire week for many patients. He is scheduled to have a MEG scan on Thursday....he needs to sleep for that one, and they are going to attempt to do it without sedating him (the wait list for sedation is ridiculously long). So...since we need him to sleep...we have to deprive him of sleep before the scan.....lucky for us that means waking up at 2:00 Thursday morning and keeping him up until the MEG scan. So, we will see how that goes. They are also attempting to book an MRI for while we are here...if they are successful, and the MEG and MRI scans are a success, then Josiah will have completed all the pre-surgery tests that they require. Then the Drs will make their desicion. We'll see how this week goes.